In two days, I’m hitting the open road in my VW Rabbit, trading in the faces and places of my prairie city for Chicago. Five days to escape, to meet new people, see new things, and have new thoughts. My world has felt quite small lately, so it’s time for a reminder that there is, indeed, much more than what my old and tired thoughts have allowed me to see.
I, however, do not have the option to escape my tired body. My white blood cells have dipped to 1.9 (it should be 4.5) and at the orders of my rheumatologist, I have been put back on prednisone. I admit that I wasn’t expecting to be put back on Evil P less than three months after I stopped taking it, but my rheumatologist feels the past severity of my lupus merits immediate action. I was very emotional when I found out, but this is the nature of my situation. Life goes on with or without shitty chemicals in your body, right? My lovely pharmacist sister said it best:
“It’s better to take low doses every once in a while, than wait and have to take large doses, right? You’ve been doing so well lately, the best I’ve ever seen you, but remember that before you weren’t properly medicated. We’re just doing it properly now.”
So, yes, Evil P has turned out to be my unexpected road trip buddy, but it won’t stop me from going on this trip and having some much needed distraction, a change of scenery, and an opportunity to re-focus and re-align myself… and if I’m lucky, I’ll pick up a few more white blood cells along the way!