My Pocket Runneth Over

Every time I sit down to write about “The Big 9,”  I stop a few words in.  I can’t do it.  I can’t sum up the lessons of the last 9 years into “9 easy-to-follow bullet points.”  That’s pretty arrogant and ridiculous.

 I’m in process.  Processing.  No concrete conclusions here.  

I’ve decided I don’t want to think about what I’ve learned in the last 9 years of my Lupus Life.  I want to think about the walk I’m going to take tomorrow, the cozy glow of my bedside lamp, of tonight’s sharing of sushi, smiles and stories with a favourite keeper.   Let’s take a pause on all this “reflecting” bullshit.  It gets way too heavy.  I’m ready to lighten things up. 

So, I’ll take my pills and wait it out like a good “patient” girl.  I’ll keep hope in my pocket.  It’ll warm my yellow Raynaud hands, so I can hold my cups of tea.  It’s  a strange, little life I have with my cheeky, hyperactive immune system.  The cheekiness doesn’t stop here.  There is more to come, but not right now.  

Not right now.

2 thoughts on “My Pocket Runneth Over

  1. I’m quite drawn in. I like. Meet Deb, a 25+yr. SURVIVOR….of SLE, RA, AS and a host of other little “goodies” that the general public calls diseases.
    I happen to love…dissecting that word, Disease.
    Let’s look at it as a dis–EASE of the body in some size, shape or form. Simpleton that I am, you know that already, I’m sure. Would be a super topic to expound upon later. LOVE YOUR WORK and THANK YOU SISTA!


    • Nice to meet you, Deb! Thanks for dropping by and commenting on this old post. I totally forgot about this one! Your suggestion re: the word disease is awesome. I totally agree that dissecting it further would be a great topic for a blog post. It’s officially on the list! Would you be okay with me accrediting you with the suggestion by your first name when I do post it? I think “patient” would also be an interesting word to dissect, which you probably gathered from my post. :) I hope to see more of your comments in the future. It’s amazing to meet survivors like yourself – I hope to learn more about your journey!


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