8 Years Later: Why I’m Still Here

8th Blogoversary

So much has changed since I started this blog, but what remains is my belief that this matters. My voice, your voice, researchers, physicians, caregivers – we all need to be part of this conversation. Our stories connect us, unite us, and bring us closer to understanding illness and how to live with it.

It seems appropriate that today, on the 8th “blogoversary” of Face Forward, I would stumble on an article that implied false information about the treatment and curability of lupus. It reminded me of why I want to be here, why I will continue to try and find a way to fit blogging and patient advocacy into my life. It’s hard to be consistent, to be here as much as I want to be, but I want to try. I want to keep myself in the conversation, to find other voices, to turn up the volume. 

It’s not just about building awareness to support research towards finding a cure. It’s also about creating a community that goes beyond your specific illness. There is a common language and wisdom in our journeys that can inspire and empower. I am honoured that I’ve been approached by patient advocates of all kinds and I plan on continuing to share the work that they do.

My story here on Face Forward began when cancer survivor, Lisa Ray, started telling hers. Storytelling is contagious and it’s the one thing that shouldn’t be cured.

 

Advertisements

This is for you

When your appearance changes due to illness/ meds, it’s not about vanity, it’s about loss. Not recognizing yourself in the mirror while struggling to heal and navigate the changes in your life adds another level of stress and anguish. I say this because I’ve experienced it.

I’ve never had cancer, nor do I claim to understand how it feels to live with it. I’ve wanted to donate my hair for a long time, but recent events informed my decision to do it now in honour of loved ones – angels, survivors, and those courageously battling – this is for you.  #8or8

20776479_10155545357863704_597227054544775173_o

Monday Inspiration & Good News!

Need some serious inspirational Monday vibes? Check out Shanelle Gabriel’s video below! I LOVE what this fellow lupus warrior has to say about fear and the unexpected freedom her diagnosis gave her.

I also have an exciting update – Face Forward has been nominated for a WEGO Health Award! Two years ago, FF was nominated for Best Kept Secret and Best in Show. This year, FF has another Best in Show nomination. I have no idea who nominated me – whoever you are – THANK YOU! I am honoured to be considered a “patient leader” and to be counted among so many inspirational individuals who are making a difference in the lives of those with a physical and/or mental illness. Congrats to all the other nominees!

 

Google Searching Through a Lupus Lens: NLO Chrome Browser Extension Review

Happy Friday, blog fam!

Over almost 8 years of blogging, it’s been exciting to see more online support networks and resources for people living with lupus. That being said, the web can feel like an information jungle, draining and time-consuming to navigate, especially when you’re trying to conserve energy during a flare. What if there was a way to get the lupus-related info you want, all in one place, with little effort?

In early June, New Life Outlook will be launching their new Google Chrome browser extension. As a member of their NLO – Lupus writing team, I was given a special preview, which I will be sharing with you today!

So, what is a browser extension, you ask? Browser extensions extend a web browser with additional features, modify web pages, and integrate a browser with other services. If you’re a visual person like me, your first reaction to reading that was probably, “say what??” Don’t worry, I took screen shots!

New Life Outlook provides support for a spectrum of conditions, so when you set up the extension, you can choose the type of information you want to see featured on your browser page.

Screen Shot 2017-05-26 at 4.01.05 PM

You can also choose specific health news providers:

Screen Shot 2017-05-26 at 4.04.15 PM

When you are done the initial set up, your Google Chrome home page will look like this:

Screen Shot 2017-05-26 at 4.06.39 PM

The home page includes the time, date, temperature and the latest New Life Outlook article recommendation, which happens to be my latest article on lupus stigma!

The left side column is your navigation panel for your browser. When you click the “nlo” circle, it slides open the health news panel:

Screen Shot 2017-05-26 at 4.08.00 PM

You have three tabs to explore: News, articles, and inspiration. You can also “favourite” any articles you want to save for later, change your background pic, etc.

Visually, I think it looks great – it’s simple and clean with lots of personalization options. Right now, they don’t give the option of uploading your own background pic, which I think would be a desirable add-on. I also think it would be great to add blogger posts as a newsfeed tab on their news panel.

That being said, I love what NLO is trying to do with the development of this browser extension! What are your first impressions? Would you try it?

If you are curious, check the chrome web store and NLO’s step-by-step instructional video on how to set up the extension!